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Boy Loses All His Hair, Gets Wrinkles- Then Doctors Figure Out What's Wrong

When you’re a child, growing up and becoming an adult can seem like a wonderful prospect. However, childhood is an equally important time and it is likely to be one of the most carefree and adventurous periods in your life. Unfortunately, one 11-year-old boy from Madhya Pradesh, India is losing large chunks of his childhood every day. The boy in question, Shreyash Barmate, suffers from progeria – a rare condition that causes teenage children to lose hair, develop wrinkled skin and start balding. The incurable condition is extraordinarily rare and it is predicted that progeria only affects 150 children worldwide.

The genetic condition that afflicts Shreyash allegedly inspired the characters in F Scott Fitzgerald’s acclaimed book, ‘The Curious Case of Benjamin Button’. The remarkable novel was subsequently adapted for the big screen in a Brad Pitt film of the same name.

Despite his condition, Shreyash, who is a keen musician and singer, has refused to give up on his dreams and aspirations. Doctors are not confident that the young boy – who’s condition causes early ageing, weak physical development and limited mobility – will live longer than two years. “I play instruments, I sing and I ride a bicycle and drive a car. I go swimming as well,” declared Shreyash to interviewers from The Sun.

The brave young boy displays heartbreaking courage in the face of adversity, telling interviewers: “I know I have a condition called progeria but I am okay with it. It’s not coming in my way at all. This condition is not affecting my dream of becoming a singer. I want to become a singer when I grow up, and I am going to get famous as well. I play instruments and nobody can play better than I do. So I am very happy.”

Arvind Barmate, Shreyash’s father, is inspired by his son’s physical and mental fortitude. Both Arvind and the Barmate family doctor agreed that Shreyash is “one of the most fabulous singers you’d ever come to know.” In a cruel twist of fate, Shreyash’s unnamed twin brother does not suffer from progeria.

Progeria, also called Hutchinson-Gilford syndrome, is named after the Greek word for prematurely ageing. The condition is caused when there is a mistake in a person’s gene sequence. The mistaken gene sequence produces an abnormal protein. This protein, known as progerin, builds up in cells and leads to advanced cell ageing.

Children who suffer from progeria are born without external symptoms. However, after approximately one year, the children begin to show signs of advanced ageing, including skin wrinkles, hair loss and malformed physical development.

Children who are diagnosed with progeria are often given very short life expectancies as their underdeveloped bodies are far more susceptible to heart issues or strokes. The oldest person with progeria is allegedly a 21-year-old man named Rupesh Kumar. According to Arvind, the community of Madhya Pradesh has always accepted his son and Shreyash has never been bullied or attacked because of his different appearance.

Source: Daily Mail
Photo: YouTube

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